Williams Syndrome
Changing Lives....One Person at a Time
The Williams Syndrome Changing Lives Foundation is a non-profit foundation centered on increasing Williams syndrome awareness, increasing education for families, the public, physicians, and therapists.
The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach and sponsored functions.
Donations made in general to the Williams Syndrome Changing Lives Foundation will help support its mission to provide assistance to those living with Williams syndrome.
"Inspired by my youngest son, Keith, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation with Heather Lawrenz, who was inspired by her daughter, Kaitlyn, also diagnosed with Williams syndrome with the vision of providing financial assistance and support to individuals/families affected by Williams syndrome."
Penny Perez
CEO and Founder
Our mission is strictly focused on the medical, therapeutic and developmental needs of children and adults with Williams syndrome. We are a wholly volunteer organization with a goal of 90 cents of every dollar going directly to families in need.
Williams syndrome, which affects approximately 1 in 10,000 can decimate families physically, emotionally and most of all financially.
Williams Syndrome Changing Lives Foundation is currently developing plans to create grants and scholarships for individuals to travel to Williams syndrome specialists and WS Clinics throughout the United States.
