"Inspired by my youngest son, Keith, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation with Heather Lawrenz, who was inspired by her daughter, Kaitlyn, also diagnosed with Williams syndrome with the vision of providing financial assistance and support to individuals/families affected by Williams syndrome."
CEO and Founder
Our mission is strictly focused on the medical, therapeutic and developmental needs of children and adults with Williams syndrome. We are a wholly volunteer organization with a goal of 90 cents of every dollar going directly to families in need.
Williams syndrome, which affects approximately 1 in 10,000 can decimate families physically, emotionally and most of all financially.
Williams Syndrome Changing Lives Foundation is currently developing plans to create grants and scholarships for individuals to travel to Williams syndrome specialists and WS Clinics throughout the United States.